Roscommon Galway Election Results Enda Kenny ECMI Group Water Schemes Orkambi Tax Relief on Health Insurance Citizens Assembly Vacant Property Scheme Valuation Services Action Plan for Rural Development CLÁR Funding Michael Fitzmaurice Denis Naughten Leaving Cert Roscommon Mental Health Insurance Premiums diesel prices PAYE rebate budget Affordable Childcare Scheme Athlone Boundary Joan Burke Finian McGrath

Michael Fitzmaurice TD welcomes approval for cystic fibrosis drug Orkambi

Roscommon Galway Election Results Enda Kenny ECMI Group Water Schemes Orkambi Tax Relief on Health Insurance Citizens Assembly Vacant Property Scheme Valuation Services Action Plan for Rural Development CLÁR Funding Michael Fitzmaurice Denis Naughten Leaving Cert Roscommon Mental Health Insurance Premiums diesel prices PAYE rebate budget Affordable Childcare Scheme Athlone Boundary Joan Burke Finian McGrath

Michael Fitzmaurice TD has welcomed the news this evening that the HSE has reached agreement, in principle, with the drug company Vertex for the drugs Orkambi and Kalydeco to be provided to people with cystic fibrosis from the beginning of next month.

Orkambi will be provided for patients aged 12 years and older and Kalydeco for patients aged 2-5 years. Commenting on the news Michael Fitzmaurice said that he expects that the medicines will be available from the 1st of May. I have attended a number of meetings organised by the protest groups held at Leinster House in recent months and I congratulate Cystic Fibrosis Ireland and spokespeople like Jillian McNulty who have worked so hard to make this victory a reality. Today’s news will be a huge relief to the 600 people who were waiting on Orkambi to be approved and also the 40 families who were waiting on Kalydeco for their children aged 2 to 5 years” he concluded.